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Employee Wellness Programs and the Law: Undermining Genetic Privacy?
Kathy L. Hudson, Ph.D. and Karen Pollitz, M.P.P., via New England Journal of Medicine Link to more items from this source
[Opinion]
May 25, 2017

"[N]early three quarters of large employers collect employee health information through wellness programs, and more than half of them provide incentives to employees to participate. Yet only 41% of workers agree to disclose health information.... H.R. 1313 ... would deem workplace wellness programs that comply with ACA standards ... to be compliant with ADA and GINA standards.... Employers could pressure employees to disclose information, and wellness programs could share identifiable information with employers. H.R. 1313 undermines the principle that genetic information needs the highest level of protection so that people can make decisions about obtaining their own information without fearing that it might be used against them."

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