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Text of IRS/DOL/HHS Request for Information on Sections 101 - 104 of Genetic Information Nondiscrimination Act of 2008
Internal Revenue Service [IRS]; Employee Benefits Security Administration [EBSA], U.S. Department of Labor; and Centers for Medicare & Medicaid Services [CMS], U.S. Department of Health and Human Services [HHS]
[Official Guidance] Oct. 10, 2008
December 9 deadline for comments. Excerpt: 1. To what extent do group health plans and health insurance issuers currently use genetic information, such as family medical history, and for what purposes? For example, is genetic information currently used for group rating purposes, or for purposes of a wellness program that otherwise complies with HIPAA's nondiscrimination requirements? 2. How do plans and issuers currently obtain genetic information (for example, through health risk assessments, the Medical Information Bureau, or other entities under common control)? 3. Under what circumstances do plans or issuers currently request or require an individual to take a genetic test? 4. Under what circumstances do plans or issuers currently ask for the results of a genetic test in order to make a determination regarding payment of benefits? What is the minimum amount of information necessary for a plan or issuer to make a determination under such circumstances? 5. What types of research do plans or issuers currently conduct or support using genetic tests?
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