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|Statement of Health Privacy Project Leader at Hearing on Privacy Concerns About Genetic Information|
U.S. House of Representatives, Committee on the Judiciary, Subcommittee on the Constitution
Sept. 13, 2002
Sept. 12, 2002; Joanne L. Hustead, J.D., Institute for Health Care Research and Policy, Georgetown University. Excerpt: This hearing correctly focuses on both collection and use of genetic information, because collection and use are inextricably linked. The best way to protect individuals from inappropriate uses of their genetic information is to prevent collection of their genetic information in the first place.
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